Transparent Sharing of Digital Health Data: A Call to Action

May 8, 2019—This document (accompanied by an editorial) focuses on digital health and cardiac electrophysiology, outlining the present state and future vision of key stakeholder groups. It also is meant to serve as a call to action to heart rhythm professionals to join in leading this transformation.

Heart rhythm care professionals and patients routinely depend on digital health data obtained by cardiovascular implantable electronic devices, medical-grade ambulatory cardiac monitors, and most recently consumer personal biometric monitoring devices. Yet the data typically reside either exclusively with the health care team, or, in the case of consumer devices, with the patient. If we are to realize the transformative opportunity of digital health, it will be necessary to ensure that all stakeholders, particularly patients, have complete, transparent, and secure access to their data.